We've all heard the term orphan when it
comes to children who have no parents . However, many of us do not realize is
that there are diseases called orphan diseases . It is a disease that many
people do not pay attention . There is little or no research funding entering
the search for causes and treatments. The reason for this is that there is not
much demand for it .
The amazing thing is, is that there are
thousands of these diseases worldwide . There are thousands of people who die
from them . They are small so it is still classified as something that is not
really in the public eye . So very often , unfortunately , the person suffering
from any of these orphan diseases really has nowhere to go . His doctors do not
know much , no support groups and no research or hope for the future of these
people .
What are the criteria for an orphan
diseases general? If it affects fewer than 200,000 people when he called an
orphan diseases . Simply not enough patients to make it worthy of investigation
.
Another interesting point , because there
are a small number of people suffering from these rare diseases that the
pharmaceutical companies that manufacture the drugs really do not want to
investigate too. We will generate a huge income for them. Most rare diseases
are genetic , which makes it even harder to find orphan disease.
In this context also comes some viruses or
bacteria that are not normally considered . Sometimes even just some strange
allergies develop . Because they are so little and is so rare that not written
in medical journals again as most diseases is loss of focus.
While companies and laboratories have an
interest in this type of diseases, will not get public funding because again
there are not enough people are affected by them and it does not justify the
inclusion of money. This makes it impossible for those who suffer from rare
diseases .
Perhaps a position that could be done is
to form groups as possible. With the Internet , it is much easier than it would
otherwise . Other groups and more voices can be heard in the light of a
particular disease or an orphan diseases much faster fall all through the
incorporation of the public eye. Once this happens, then a lot of interest
begins on the surface of various interest groups who are willing to support a
particular type of research on the problems .